Sincerest of thanks to those joining our campaign to Learn Give Thanks and Resolve during our first #GivingTuesday.
Last week, we had close to $17K to secure by the end of the year. This week, we have just a little more than $14K to go to reach our goal defined by a MR Bauer Foundation matching grant. Progress!
The deadline is December 31st, and we hope you take the opportunity today to make your year-end charitable contributions. Then, we can continue to empower others to define, communicate and document their end of life preferences throughout the coming year.
The Institute of Medicine recently published some reasons why our work is so essential. The independent, non-partisan organization’s new report, Dying in America, highlighted recommendations for remedying the crisis of end of life care in our communities. As much as we want to be in control of decisions about our own care, too many factors can work against realizing our desire.
More than a quarter of adults, including those aged 75 and older, have given little or no thought to their end of life wishes, and even fewer have captured these wishes in writing or through a conversation. This is despite the results of recent polls showing Americans worry about the potential high costs of care near the end of life, and the desire not to be a burden- financial or otherwise- on family members.
What did the Institute of Medicine suggest be done about it?
PUBLIC ENGAGEMENT AND EDUCATION.
Great! Because that is exactly what we have been doing, throughout our community and online.
Here’s what the report specifically recommended:
- Use appropriate media and other channels to reach audiences and underserved populations ✔
- Encourage meaningful dialogue among individuals and their families, caregivers and clinicians about values, care goals and preferences related to advanced serious illness ✔
- Provide information about care options and informed decision-making regarding treatment and care ✔
We are on the right track, and we intend to stay there. We need your support to ensure 2015 will be one of expanded engagement and education.
Here are some photos of LMM in action lately:
If you would rather support us by mail, here’s how to reach Life Matters Media:
517 N. Racine Unit 2
Chicago, IL 60642
Thanks so much for making our work possible. We wish you the happiest of holidays.
President and Co-Founder
Life Matters Media’s Mission
Life Matters Media aims to be the premiere provider of information, resources and support for all involved in end of life decision-making. Through fostering better communication, we will empower the ill, aged, caregivers, surrogates and medical providers to navigate this life phase with confidence and dignity.
Life Matters Media’s Values
- All individuals should have the ability to participate in decisions that affect their destinies.
- Multiple and varied voices create a richer and more productive marketplace for the exchange of information.
- A broad range of choices surrounding end of life issues exists. These choices should be considered carefully.
- Neutral platforms are best to explore this journey and bring end of life issues to the forefront in a reflective forum.
Your Opinion Matters
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Life Matters Media is a 501(c)(3) organization. We are grateful for your support in our mission.
Volunteers Help Incapacitated Adults With No Family Or Friends By Daniel Gaitan
Incapacitated adults without family or friends benefit from volunteer surrogates that act as medical decision-makers and patient advocates before, during and after hospitalization, according to findings from an innovative program to train surrogates.
Securing Hospice Care: An Interview With Dr. Kathleen Unroe By Daniel Gaitan
Researchers, led by Dr. Kathleen Unroe, a Regenstrief Institute investigator and Indiana University Center for Aging Research scientist, determined that nursing home hospice patients are more likely to receive aid from both Medicare and Medicaid and suffer from dementia.
Unroe spoke with Life Matters Media about the benefits of hospice care, the importance of advance health care planning and Medicare spending.
The Value Of Hospice Care: An Interview With Dr. Ziad Obermeyer By Daniel Gaitan
Critically ill patients enrolled in hospice programs are far less likely to opt for costly, often unnecessary invasive procedures and die in hospitals, according to an extensive new study led by Dr. Ziad Obermeyer, an emergency medicine physician at Brigham & Women’s Hospital.
“Elderspeak”: Words Can Hurt By Craig Klugman, Ph.D.
As the plot unfolded in the season premiere of HBO comedy, Getting On, I noticed the excessive use of “toddlerspeak” directed at elderly patients within the community hospital’s hospice unit. Whenever a physician or nurse was speaking to a patient, they tended to use baby talk—with a high pitch, lilting tone, longer space between words, elongated space around vowels, and simple, shortened words.
StoryCorps Chicago: Talking About Death
Co-Founders Dr. Mary F. Mulcahy and Randi Belisomo talk about their decision to launch LMM.
Randi Belisomo and Loyola Bioethics Institute's Mark Kuczewski Discuss Study Findings Regarding Medical Students' Concerns about Becoming Desensitized to Dying Patients
"End of Life Care in a Changing Health Care Environment: The Impact of the Affordable Care Act and Accountable Care Organizations" was presented to a live audience gathered at Northwestern University's Kellogg School of Management on November 13th.
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Hundreds gathered at the Chicago Cultural Center to learn about and debate so-called “Death with Dignity” legislation on Saturday. The event, sponsored by nonprofit advocacy…