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Quality of life at the end of life

Mother Shares Final Moments Of 4-Year-Old’s Struggle With Cancer

LIFE MATTERS MEDIA STAFF

MARYLAND – A mother whose 4-year-old son died of a rare cancer in February offered her heartbreaking story on Facebook.

Ruth Scully’s son, Nolan, died of a rhabdomyosarcoma, a rare soft tissue cancer.

Last week, Scully said she was ready to share her feelings and wrote an emotional Facebook post that quickly went viral – garnering more than 615,000 shares and thousands of comments.

“Two months. Two months since I’ve held you in my arms, heard how much you loved me, kissed those sweetie ‘pie’ lips. Two months since we’ve snuggled. Two months of pure absolute Hell,” she wrote.

She continued: “I’ve wanted for a long time to write a little about Nolan’s last days. His last few days shined with how amazing my son is. How beautiful he is. How he was made of nothing but pure love. This may be long, but bear with me, it’s agony unlike any other.”

Nolan was diagnosed in November 2015 after having trouble breathing and a stuffy nose. Scully shared one of their final conversations.

Me: Poot, it hurts to breathe doesn’t it?
Nolan: Weeeelll…. yeah.
Me: You’re in a lot of pain aren’t you baby?
Nolan: (looking down) Yeah.
Me: Poot, this Cancer stuff sucks. You don’t have to fight anymore.
Nolan: (Pure Happiness) I DONT??!! But I will for you Mommy!!
Me: No Poot!! Is that what you have been doing?? Fighting for Mommy??
Nolan: Well DUH!!
Me: Nolan Ray, what is Mommy’s job?
Nolan: To keep me SAFE! (With a big grin)
Me: Honey … I can’t do that anymore here. The only way I can keep you safe is in Heaven. (My heart shattering)
Nolan: Sooooo I’ll just go to Heaven and play until you get there! You’ll come right?
Me: Absolutely!! You can’t get rid of Mommy that easy!!
Nolan: Thank you Mommy!!! I’ll go play with Hunter and Brylee and Henry!!

Scully also described his last day. She said she only left his side to shower and when she returned, doctors said he slipped into a coma.

“When I opened the bathroom door, his Team was surrounding his bed and every head turned and looked at me with tears in their eyes. They said “Ruth, he’s in a deep sleep. He can’t feel anything”. His respirations were extremely labored, his right lung had collapsed and his oxygen dropped.”

“I ran and jumped into bed with him and put my hand on the right side of his face. Then a miracle that I will never forget happened….”

“My angel took a breath, opened his eyes, smiled at me and said “I Love You Mommy”, turned his head towards me and at 11:54 pm Sgt. Rollin Nolan Scully passed away as I was singing “You are My Sunshine” in his ear.”

Nolan, who dreamed of becoming a police officer, used to curl up on a rug on the bathroom floor while she showered. In her post, Scully added a picture of Nolan curled up on a rug on the bathroom floor.

“My son was terrified to leave my side, even as I showered,” she said. “Now I’m the one terrified to shower. With nothing but an empty shower rug now where once a beautiful perfect little boy laid waiting for his Mommy.”

A GoFundMe page has been set up as a memorial fund and to help cover medical bills. So far, more than $50,000 has been raised.

Each year, about 350 people are diagnosed with rhabdomyosarcoma.