Life Matters Media
Quality of life at the end of life

UPDATE: Charlie Gard To Die With Hospice Care

BY DANIEL GAITAN | daniel@lifemattersmedia.org

The British High Court has decided that 11-month-old Charlie Gard will spend his final moments in a hospice before he is taken off life support.

“It is not in Charlie’s best interests for artificial ventilation to continue to be provided to him, and it is therefore lawful and in his best interests for it to be withdrawn,” according to the court order released Thursday.

The decision did not give further details about exactly when life support would be removed, The New York Times reports. However, the decision came after the judge presiding over the case set a deadline of noon Thursday for the infant’s parents, Chris Gard and Connie Yates, and Great Ormond Street Hospital to come to an agreement.

Charlie was born with RRM2B encephalomyopathic mitochondrial DNA depletion syndrome — a rare genetic disorder with no cure. Charlie cannot move, see, hear or breathe on his own. He also suffers severe seizures and has irreversible brain damage.

Hospice aims to provide comfort care and pain management rather than aggressive treatments- usually for terminally ill patients with six months or less to live. Hospice is most often used when curative treatments are no longer effective.