Resources

Eldercare and Senior Living Resources

A Place for Mom is dedicated to being a comprehensive senior living resource. A Place for Mom aspires to be leaders in the senior care industry, providing valuable information, resources, and best-in-class customer service to families and partners.

http://www.aplaceformom.com

Welcome to Caring Hearts for Seniors, a Chicago-area company that offers care management services for the elderly and disabled. If you’re finding it difficult to care for a relative or friend who wants to live as independently and productively as possible, we can help.

http://www.caringheartsforseniors.com

Homecare.com provides expert information, practical action steps, guides, resources and personalized plans to help caregivers make sound decisions and successfully navigate the complex world of eldercare.

http://www.homecare.com

Our Parents is a free elder care directory, focused on assisting adult children with aging parents find the right care solution that meets the parents’ and family’s unique needs. Our goal is simple: to be a resource always on the side of families, as they face difficult decisions about their loved one.

http://www.homeinstead.com

The Home Instead Senior Care network is the nation’s leading provider of in-home companion care services. Offering Client Care Coordinators to meet the needs of seniors at home and during transition from hospital to home, they provide management and care of physical, social and safety needs.

https://www.ourparents.com

Free resource for finding local senior homes providing comprehensive information on all nursing homes, assisted living, memory care and retirement communities, as well as articles on important senior housing topics to help you through your search.

http://www.seniorhomes.com

Caregiver Resources

Caregiver Media Group is a leading provider of information, support and guidance for family and professional caregivers. Founded in 1995, we produce Today’s Caregiver magazine, the first national magazine dedicated to caregivers, the “Fearless Caregiver Conferences”, and our web site, caregiver.com which includes topic specific newsletters, online discussion lists, back issue articles of Today’s Caregiver magazine, chat rooms and an online store. Caregiver Media Group and all of its products are developed for caregivers, about caregivers and by caregivers.

http://www.caregiver.com

The Caregiver Action Network is the nation’s leading family caregiver organization working to improve the quality of life for the more than 65 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. CAN serves a broad spectrum of family caregivers ranging from the parents of children with special needs, to the families and friends of wounded soldiers; from a young couple dealing with a diagnosis of MS, to adult children caring for parents with Alzheimer’s disease. CAN (formerly the National Family Caregivers Association) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.

http://www.caregiveraction.org

CareTree is a centralized, coordinated health record that is as simple as Facebook to use. It empowers families, caregivers, providers and patients to communicate and coordinate all care activity. CareTree is an open platform that integrates with telemedicine devices, EMR patient portals and other important sources of data to make sure that all care stakeholders have real-time information at their fingertips 24-7.

http://www.caretree.me

Founded in 2007, Caring.com is the leading online destination for those seeking information and support as they care for aging parents, spouses, and other loved ones. Our mission: to help the helpers. We equip family caregivers to make better decisions, save time and money, and feel less alone — and less stressed — as they face the many challenges of caregiving. Caring.com maintains a strong social media presence on Facebook, Twitter, YouTube, LinkedIn and Google+.

http://www.caring.com

CaringBridge offers: CaringBridge sites: Personal, protected sites make it easy to post health updates during any type of health event. Family and friends visit the site to stay informed and leave supportive messages. SupportPlanner: calendar that helps family and friends coordinate care and organize helpful tasks, such as bringing a meal, taking care of pets and other needs.

http://www.caringbridge.org

Caring Connections, a program of the National Hospice and Palliative Care Organization (NHPCO), is a national consumer and community engagement initiative to improve care at the end of life. Caring Connections provides people with information and support when they are planning ahead, caring for a loved one, living with an illness or grieving a loss.

http://www.caringinfo.org

Caring From a Distance (CFAD)—an organization for long-distance caregivers. Are you one of the 6.9 million Americans struggling to care for an aging parent or other loved one who lives in a far-away city? If you are, we are here to help.

http://www.cfad.org

Empowers family caregivers by providing online support, healthcare management tools, and other accessible resources.

http://www.sageminder.com

Illness-specific Resources

The Alzheimer’s Association is the leading, global voluntary health organization in Alzheimer’s care and support, and the largest private, nonprofit funder of Alzheimer’s research.

http://www.alz.org

The American Cancer Society is the nationwide, community-based, voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.

http://www.cancer.org

Caring Connections, a program of the National Hospice and Palliative Care Organization (NHPCO), is a national consumer and community engagement initiative to improve care at the end of life. Caring Connections provides people with information and support when they are planning ahead, caring for a loved one, living with an illness or grieving a loss.

http://www.caringinfo.org

The Cancer Support Community is an international non-profit dedicated to providing support, education and hope to people affected by cancer.

http://www.gildasclub.com

I Had Cancer is a social support network with the mission of helping people deal more effectively with life before, during and after cancer.

http://www.ihadcancer.com

The Lance Armstrong Foundation provides support for people affected by cancer, founded in 1997 by cancer survivor and cyclist Lance Armstrong. The LAF states that its mission is ‘to inspire and empower’ cancer survivors and their families. The LAF also aims to provide practical information and tools for people affected by cancer.

http://www.livestrong.org

The Michael J. Fox Foundation is dedicated to finding a cure for Parkinson’s disease through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson’s today.

https://www.michaeljfox.org

Mom, Always provides a safe place for moms who know they will leave their children too soon. Find advice, a range of religious and secular insights, and words of comfort from experts who understand.

http://momalways.org

The National Institutes of Health (NIH), a part of the U.S. Department of Health and Human Services, is the nation’s medical research agency—making important discoveries that improve health and save lives.

http://www.nih.gov

Stupid Cancer (aka The I’m Too Young For This! Cancer Foundation, i[2]y) is a non-profit organization that empowers young adults affected by cancer through innovative and award-winning programs and services. Stupid Cancer is the nation’s largest support community for this underserved population and serve as a bullhorn for the young adult cancer movement.

http://stupidcancer.com

Palliative and Hospice Care / End of Life Planning Resources

The American Academy of Hospice and Palliative Medicine is a professional organization for physicians specializing in hospice and palliative medicine. Membership is also open to nurses and other health care providers who are committed to improving the quality of life of patients and families facing life-threatening or serious conditions.

http://www.aahpm.org

Aging with Dignity introduced Five Wishes to the nation in 1998. Dubbed “the living will with a heart and soul,” Five Wishes today meets the legal requirements in 42 states and has helped millions plan for and receive the kind of care they want. Five Wishes is unique among advance directives because it is user-friendly and easy to complete.

http://www.agingwithdignity.org/

Be@Ease is a community partnership working to help the people of Barrington, IL, complete advance health care plans and talk about their end of life wishes with loved ones and caregivers.

http://www.beatease.org

The Center to Advance Palliative Care (CAPC) provides health care professionals with the tools, training and technical assistance necessary to start and sustain successful palliative care programs in hospitals and other health care settings. CAPC is a national organization dedicated to increasing the availability of quality palliative care services for people facing serious illness.

http://www.capc.org

Midwest Palliative & Hospice CareCenter is a nonprofit, community-based healthcare organization providing hospice care, palliative care and grief support in north and northwest Chicago, the north suburbs and Lake County, Illinois.

http://www.carecenter.org

Caring Connections, a program of the National Hospice and Palliative Care Organization (NHPCO), is a national consumer and community engagement initiative to improve care at the end of life. Caring Connections provides people with information and support when they are planning ahead, caring for a loved one, living with an illness or grieving a loss.

http://www.caringinfo.org

Compassion and Choices is the leading nonprofit organization committed to helping everyone have the best death possible. We offer free counseling, planning resources, referrals and guidance, and across the nation we work to protect and expand options at the end of life. For over thirty years we have reduced people’s suffering and given them some control in their final days – even when injury or illness takes their voice. We are experts in what it takes to die well.

http://www.compassionandchoices.org

Everplans provides an easy-to-navigate website with guides divided into four clear sections: “Long Before Death;” “Eldercare And End Of Life;” “After A Death” and “Be There For Someone.” The Everplans blog provides up-to-date articles about estate planning, advance health care directives and product reviews.

http://www.everplans.com

Final Roadmap is a web-based toolkit focused on end of life issues.  It is both straightforward and comprehensive, with sections for Medical Care, Legal & Financial, Physical Death, Visitation/Services/Remains, Notifications and Messages for Loved Ones. The concept is to allow the end of life to be approached privately, simply and with total security. A person buys Final Roadmap once and keeps it forever, changing it as much and often as he or she desires and communicating wishes securely with others should he or she choose to do so.

http://www.finalroadmap.com

Get Palliative Care provides clear, comprehensive palliative care information for people coping with serious, complex illness. Key components of the site include a Palliative Care Directory of Hospitals, a definition of palliative care, and a detailed description of what palliative care is and how it is different from hospice. It also provides an interactive questionnaire to assist people in determining whether palliative care is appropriate for them or their loved-ones.

http://www.getpalliativecare.org

The Illinois Hospice and Palliative Care Organization (IL-HPCO) is committed to promoting and enhancing end-of-life care in the state of Illinois, through education, advocacy, technical and supportive services. Our mission is to expand access to exceptional hospice and palliative care for patients and families coping with the close of life experience.

http://www.il-hpco.org

Gift of Hope Organ & Tissue Donor Network is a not-for-profit organ procurement organization that coordinates organ and tissue donation and provides public education on donation in Illinois and northwest Indiana. Since 1987, Gift of Hope has saved the lives of more than 18,000 organ transplant recipients and improved the lives of hundreds of thousands of tissue transplant recipients through our efforts.

http://www.giftofhope.org/

The Informed Medical Decisions Foundation (previously known as the Foundation for Informed Medical Decision Making) has been working for over two decades to advance evidence-based shared decision making through research, policy, clinical models and patient decision aids. We are a Boston-based organization with a network of medical editors and clinical advisors from some of the most prestigious medical institutions in the world.

http://informedmedicaldecisions.org

National Healthcare Decisions Day exists to inspire, educate & empower the public & providers about the importance of advance care planning. National Healthcare Decisions Day is an initiative to encourage patients to express their wishes regarding healthcare and for providers and facilities to respect those wishes, whatever they may be. The 6th Annual NHDD will be April 16th, 2013.

http://www.nhdd.org

The National Hospice and Palliative Care Organization (NHPCO) is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end of life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones.

http://www.nhpco.org

Tools, kits and resources to help you make peace with life and make clear plans in advance for death. Such preparation can prevent suffering and create opportunities for peace, closure and healing.

http://www.oktodie.com/

Pallimed was founded in 2005 by Drew Rosielle, M.D., as a way to keep track of interesting articles from different journals that were relevant to palliative care. The blog has expanded to include reviewing media coverage of hospice and palliative care issues.

http://www.pallimed.org

Rainbow Hospice and Palliative Care provides comfort and dignity for individuals at the end of their lives and is proud to among the oldest and largest of the non-profit organizations serving Chicagoland. The organization extends that comfort to support bereaved loved ones of Rainbow patients and others in the greater Chicago community. Rainbow Hospice serves residents of Cook, Lake, McHenry, Kane, DuPage and Will Counties.

http://www.rainbowhospice.org

Written by palliative care specialist Robert Fried, M.D., this blog challenges myths and tells patients what they need to know about palliative care, hospice, serious illness and late-life care.

http://www.sufferingisnotrequired.com

The Being with Dying professional training program addresses the need for healthcare providers to develop knowledge and skills in the psycho-social, ethical, and spiritual aspects of dying, which is an approach to caregiving that is relationship-centered.

http://www.upaya.org